I will try to summarize 12 years. It's been a long road. Diagnosed in 2003, doubling rate of 12 months, PSA 4.59. Standard seeding was done in Roseville California. PSA drop was lazy:
05/2008 1.1 (nadir)
01/2009 2.1 (9 month doubling)
By December 2008, we had moved to Denver Colorado. By that time my life insurance carrier told me that I could not renew, adding to the seriousness. I was referred to one of the best radiation oncologists in town, Littleton Oncology. Another biopsy showed Gleason 8 in one of 12 cores. All scans showed no involvement outside prostate. The plan: 6 months of ADT, during which two sessions of hyperthermia radiation and some IMRT. After this triple therapy I finally joined the zero club, for a while.
04/2014 2.94 (3.5 month doubling)
At this point I decided to get help outside Colorado. First went to Dr. Duke Bahn who proved that there was no cancer in prostate or vessels. Then went to Dr. Fabio Almeida to get a C11 acetate scan in Arizona, which showed a 1.8 cm spot inside a pelvic lymph node. I signed up with Dr. Scholz – Lam –Turner in Marina Del Rey California after moving back to the area. The plan: Nine months of ADT – Casodex, then SBRT radiation to the node in five fractions and try for durable remission. I had to cut Casodex dosage in half due to liver reaction.
07/2014 0.08 (ADT)
03/2015 0.02 (SBRT)
I have reduced animal protein consumption to one meal per day and began taking a proven supplement (Pomi-T). Side effects to the SBRT include frequent and sudden urges to defecate, but this was expected and should be temporary. My wife and I plan to go the PCRI mid year conference at the LAX Marriott tomorrow. Keeping this disease at bay has been a high priority, similar to a second job.
Great news. Down to less than 0.015. My third nadir. The C-11 acetate imaging and SBRT spot welding, appears to have worked. Testosterone rising, now 105. Doctor has taken me off active list, bolstering confidence. I'm on limited animal protein and taking the Pomi-T supplement of pomegranate, green tea, turmeric and broccoli.
Getting zeros on PSA this past year. No symptoms or side effects. Perhaps third time was the charm.
Kevin's e-mail address is: klouche AT hotmail.com (replace "AT" with "@")