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Jim G lives in Minnesota, USA. He was 59 when he was diagnosed in June, 2016. His initial PSA was 10.00 ng/ml, his Gleason Score was 9, and he was staged T3a. His initial treatment choice was Surgery (Robotic Laparoscopic Prostatectomy) and his current treatment choice is ADT-Androgen Deprivation (Hormone) (Monotherapy). Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2020 SO THERE IS NO UPDATE.

2015: Annual physical discovered high PSA: 5. I am very active cyclist and had been reading about affect of cycling on PSA. Got off bike for a week, re-took PSA. PSA dropped to 3.5. Urologist recommended watching.

June '16: Annual physical discovered high PSA: 10. Had biopsy shortly after. Was not a complete biopsy (only 4 cores) as I had a lot of pain. However, biopsy was rated 7 (4+3).

September '16: Prostatectomy at Mayo Clinic in Rochester in September. Pathology: Gleason 9, 1 extracapsular extension, 3 positive margins, no cancer found in seminal vesicles, no cancer found in lymph nodes. Difficult recovery. Lots of pain in my rectal area for the first month. Could not sit at all and standing was uncomfortable as well. However, eventually recovered and felt great. Continence: Incontinence for first couple months but was pretty month dry at 9 weeks. Impotence: Able to get hard with drug almost immediately but not very strong.

Dec 16: First PSA post-prostatectomy: .1 Based on PSA and the probability of recurrence with my scores decided to do a round of radiation as well. Met with oncologist at Mayo clinic. Received first shot of Lupron (ADT) in anticipation of radiation.

Mar 17: PSA: non-detectable. Received 2nd Lupron shot (this will, hopefully, be my last as only planning on 6 months of Lupron). Scheduled IMRT radiation to begin in April.

April 17: Begin radiation at Mayo clinic. 36 sessions (5 days per week).

UPDATED

June 2018

December 2018 - Testosterone level normal. PSA undetectable.

UPDATED

August 2019

Now: July 2019. I am 62. Diagnosed ~3 years ago. Gleason 9. Surgery and radiation in 2016 & 2017. Recurred in June 2018. Aggressive: 3 week doubling time. Several scans (MRIs and choline and PSMA Pet scans) could not find the cancer, even at PSA of 5. Started ADT in September. Hoping for a long time before CRPC. Planning on stopping ADT in 4 Months and seeing if we can find cancer again. Seeing Eugene Kwon at Mayo.

Jim's e-mail address is: jimgeppert AT gmail.com (replace "AT" with "@")

NOTE: Jim has not updated his story for more than 15 months, so you may not receive any response from him.


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