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YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

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E-LETTER #2 - GO TO INDEX FOR EARLIER LETTERS

 

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

Prostate men need enlightening, not frightening

September 7, 2011

Good Response to first E-Letter: Thanks and Congratulations to the movers.

The initial response to the idea of sending out an E-Letter was excellent - thank you all for that vote of confidence!! There are more than 400 subscribers from the 1,000+ invitations I sent out and knowing that some of these would have been caught in Spam filters, that’s a pretty good result. Interestingly enough it seems from the reports I have that many people have passed on copies of their E-Letters, which is fine as far as I am concerned. The more people we can reach, the better and new subscribers are welcome. Just click on this link Subscribe to this E-Letter I have simplified subscription process a little, but Bravenet (who supply the service) comply with standards aimed at reducing Spam. If anyone who subscribes does not click o n the confirmation e-mail generated, they will not be added to the Mailing List.

About 40 of the men who were good enough to share their stories on YANA have migrated across to the myProstate Site and have shared their story there. Thank you to all you initial movers – that’s about 10 per cent of the current subscribers. I’m hoping that level of participation can double while I’m away on my next trip – see below – and I’d really be happy to see the first 100 up by the time I get back.

I cannot emphasise the importance of telling your story on the new site. I have had many mails since I announced the non-continuance of updating the YANA Experience pages. All say how useful it was to be able to read other men's experiences in the early dark days of diagnosis. It doesn’t take much effort to really help those who come behind us – to show them the way.

The links below to the page in the YANA site will give some help in dealing with what seems initially to be a fairly complex site. Please overcome your genetic reluctance to read instructions and get on with sharing your tale - especially why you chose the path you did and how that has turned out for you. Go to it:-)

Where do you get your information?

When I signed up for the E-letter service, my main intention was to find a way of telling as many people of the changes I was making to the YANA site and to tell them about the myProstate site.

It was only after I had started that process that it occurred to me that this would be a useful way of trading relevant information to other prostate cancer men. Good thought, but what was relevant in this context? After all the men who subscribe cover a very wide range of therapy choices, stages and outcomes.

My first thought was to mention The "New" Prostate Cancer Infolink mainly because I personally have found it so useful. There are so many media articles published, so many links posted in Internet Forums and it is often difficult to evaluate them. The articles themselves are often simply the media releases put out by interested parties and even Abstracts of good studies are difficult to interpret at times without reading the full paper. Mike Scott, who is the Sitemaster of the Infolink does a great job in summarising and analysing the information. I have found that very helpful indeed. If you use the RSS link on the site you can get a message every time Mike posts new items.

In future E-Letters I will mention other sites that might be useful and I will be reviewing and re-writing the Resources page in YANA. It would be a help for me to focus on these issues if you could e-mail me (just hit Reply) and give me the URL of any site you have found useful, with a brief note as to why this was so.

We're off - again

Strictly in accord with our plan to make the most of life while we have it – or before our ageing bodies protest too much – we are off on a cruise at the end of this month, so you are unlikely to hear from me again before the end of October or early November.

Our travel plans for this trip are to fly to London via Kuala Lumpur (that’s about a 27 hour trip – Australia is a long way from anywhere!). We board the good ship Marco Polo on September 29 and cruise the Baltic and Mediterranean for the best part of a month. I’m really looking forward to the break and the voyage. Nothing to beat a cruise for me.

By chance we will be in Stockholm on October 7 and will be able to celebrate our 44th Anniversary with our good friends Lars and Gerd. That was an unexpected bonus.

Using the myProstate site

At first sight the myProstate site can seem somewhat overwhelming, but it is a very good site indeed. Although men are genetically unwilling to read instructions, try reading this Using the myProstate site

Please pay particular attention to Creating Your Story and
Ordering Reports

DREs - don't we love 'em?

I added an item to the TROOPC section (which aims to put a smile on the face of the prostate man) showing the 'lighter' side of DREs - and of prescriptions.

Page down on this link to see the Australian Flying Doctor in action at The DRE and then click on Top Prescription