I experienced prostatitus symptoms most of my early 40's and on and off again elevated PSA 1.5-2.0 range. Diagnosed Jan 2013 age 58 w/ early stage after 12 core samples w only 1 core w less than 5% positive with cancer on left side of the prostate. Only considered robotic surgery at John Hopkins Baltimore and proton therapy at Hampton university proton therapy institute at Hampton Virginia. Decision to go with proton really made because concern of side effects ED and incontinence after having having several friends that chose the surgery. Even with my proton choice there were concerns because in 2008 I had hip replacement titanium and cobalt metals hip. The standard proton protocols are treatment on alternating hips but with having 1 metal hip on my left side that would require a modified oblique both from front and rear which could increase chances of side effects.
Regardless in May proton was my choice with 42 treatments and a modified approach by the excellent doctors and therapists completed in July 2013. I only experienced minor side effects during the 9 weeks of mostly minor urgency to urinate and burning sensation after ejaculation. Flomax was prescribed which resolved the urgency by the end of my treatments. I'm now 6 months post treatment with my first post PSA in October 3.2 down from 5.2 when my proton treatment actually began. Proton docs advise nadir will take 12-18 months and Next PSA will be in February 2014.
Update 5/1/14 most recent PSA post proton February was 1.9 still heading downward. However did experience side effect of rectal spasm which is result of radiation treatment. Had colonoscopy in April and confirmed minor tissue change in colon area of prostate which is causing the spasm. No bleeding treatment is low dosage muscle relaxer to calm spasms and suppositories as needed to treat irritation. Good news erectile and urinary functions are good. Now 10 months post treatment and PSA still dropping. Next update July w PSA results.
I'm now 1 year post treatment and experiencing mild to moderate discomfort. My proton doctor had me try steroid treatment to reduce inflammation I've been experiencing. Also tried muscle relaxer pill for the rectal spasms which helped some. Not sure if all these are more of mental response due to small increase in PSA from 1.9 jumped to 2.2. My urologist is absolutely useless as he obviously didn't approve of my proton choice over surgery. While he hasn't actually said it it's more of how he responds to me with these side effects I've experienced. Proton doc wants to do another PSA in October before running any CT or PET scans. The results are diminished by the reflection of my metal on metal hip replacement that also has been recalled but I have to wait for metal toxicity to begin or pain before they will replace it. More to come in October 2014.
Sorry for not updating my story for those following but I must say as your life returns to normal, sadly it's easy to forget that many are still struggling with PC and I am very sorry for that. However I am still very encouraged with my choice of proton May 2013 and completion of treatment in July of 2013. My PSA continues to fall as my my October 2014 was 1.2 and my last in February 2015 had dropped again to 1.0. I am scheduled for another PSA in August of 2015 which will be 2 Years post treatment. I continue to feel both encouraged and blessed that Proton treatment was available when diagnosed in 2013. No regrets and please reach out to me if I can be of assistance.
It is just hard to believe it has been 3 years this month July since my Proton Treatment for PC.
This past February 2016 I had my 6 month PSA Check and my PSA is now 0.7. So blessed and glad to be on that side of the decimal point!!!!
Wow! such great news as having been up to 5.3 prior to my Proton Treatment not to mention my entire adult years 45-50's always floating in 2.0-3.0's annually PSA. I am currently scheduled for my next PSA on August 5th. and will update the information again following my doctor appointment in late August.
August 5 2016 I had my 3 Yr Post PC (Proton Treatment 7.2013) PSA Blood Test.
And the results were .5 which is absolutely awesome!
Wishing Low PSA's to all
August 2017 Update PSA .6 4 Years Post Cancer
I do apologize for not updating my story as my life has essentially returned to that normal state where you you just don't think about your prostate cancer but at the anniversary of your diagnosis or your PSA blood work scheduled. I'm still on 6 month PSA blood work and will remain until 5 years post treatment . I just celebrated 4 Years post cancer and thrilled with my PSA's numbers staying low. I was 5.3 pre-treatment and have now been at the .5 to .6 for the past year. My August 2017 Proton Oncologist visit was uneventful with DRE exam smooth Prostate and reduction in size. Great News!
Wishing better health and Low PSA's to all.
Just completed 4.5 years celebrating post Proton Treatment with my PSA still @ .50, down from 5.3 in 2013.
Wishing the best and Low PSA's to all.
Dave's e-mail address is: dvjte AT cox.net (replace "AT" with "@")