Hi all at yananow,
My story is at a page called Patrick's Concerns, go to http://www.turneraudio.com.au and click on Patrick's Concerns link, and my page has pile info about my PCa progress so far, a new update will be soon, because I just had IMRT with Calypso at Epworth Hospital in Melbourne to add 32 Grays to the 70Grays I had with EBRT inn 2010. ADT began to fail, and I am now waiting 6 weeks to see if Psa goes DOWN, instead of UP, like we all want.
Unkel Destinee has the final say - we are all just a little dot in the middle of Eternity.
Its now November 2017, and "normal" ADT with Lucrin monthly injects are continuing since 2010 when I began ADT. In addition to Lucrin, I had Cosudex 50mg/day from July 2016 onwards but it stopped working in early 2017, so it only helped for 6 months. In 2016, I had additional 31Grey IMRT to to PG which was initially treated with 70Gy EBRT in 2010. I also had 45Gy to two upper thorax positive lymph nodes found during first PsMa Ga68 scan in 2016 when Psa was about 5.0. In June 2017, the second PsMa Ga68 scan found a large number of tiny mets in bones and lymph nodes and I realised I am riddled with cancer. Psa was about 5.0 at this scan. But Pca in PG seems to have been reduced by IMRT in 2016, but 45Gy did nothing to lymph node spread. It seems my type of Pca needs maximum possible RT to kill it, and 45Gy merely tickled it pink. I stopped Cosudex in June this year, waited a month, Psa went to 7.2, and I began Zytiga + prednisolone and next PSA 2 months later was 3.4, and maybe it is 3.0 now but then my Pca may laugh at doctors and Psa could rise, and I may have to go to Docetaxel chemo, which is unlikely to stop it so then maybe Lu177 systemic RT, and then maybe I need more than 4 infusions. It seems that my Puff The Magic Prostate Grenade is slowly exploding under me and if I get max RT I may delay death a bit, or else I have a terrible life anyway from side effects of treatment.
But right now, Nov 2017, I am cycling 300km a week and back in a cycling group I last cycled with some 4 years ago, and I am not the slowest. This is mainly due to having both knee joints replaced in Feb this year, 2017, and that operation was extremely successful. I'll keep cycling until the cancer pushes me off my bicycle - a nice Cannodale carbon road bike with 10 speeds.
I am lucky I don't get depressed. The cycling keeps my heart and lungs and fitness high, but as soon as PCa spreads a lot more then it's game over.
Cheers to all. Patrick Turner.
Patrick's e-mail address is: patrick AT turneraudio.com.au (replace "AT" with "@")