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This member is a YANA Mentor This is his Country or State Flag

Patrick Turner lives in Australia. He was 62 when he was diagnosed in December, 2009. His initial PSA was 5.50 ng/ml, his Gleason Score was 9, and he was staged T3a. His initial treatment choice was External Beam Radiation+ADT (Other) and his current treatment choice is None. Here is his story.

Hi all at yananow,

My story is at a page called Patrick's Concerns, go to http://www.turneraudio.com.au and click on Patrick's Concerns link, and my page has pile info about my PCa progress so far, a new update will be soon, because I just had IMRT with Calypso at Epworth Hospital in Melbourne to add 32 Grays to the 70Grays I had with EBRT inn 2010. ADT began to fail, and I am now waiting 6 weeks to see if PSA goes DOWN, instead of UP, like we all want.

Unkel Destinee has the final say - we are all just a little dot in the middle of Eternity.

Patrick Turner.

UPDATED

November 2017

Its now November 2017, and "normal" ADT with Lucrin monthly injects are continuing since 2010 when I began ADT. In addition to Lucrin, I had Cosudex 50mg/day from July 2016 onwards but it stopped working in early 2017, so it only helped for 6 months. In 2016, I had additional 31Grey IMRT to to PG which was initially treated with 70Gy EBRT in 2010. I also had 45Gy to two upper thorax positive lymph nodes found during first PsMa Ga68 scan in 2016 when PSA was about 5.0. In June 2017, the second PsMa Ga68 scan found a large number of tiny mets in bones and lymph nodes and I realised I am riddled with cancer. PSA was about 5.0 at this scan. But Pca in PG seems to have been reduced by IMRT in 2016, but 45Gy did nothing to lymph node spread. It seems my type of Pca needs maximum possible RT to kill it, and 45Gy merely tickled it pink. I stopped Cosudex in June this year, waited a month, PSA went to 7.2, and I began Zytiga + prednisolone and next PSA 2 months later was 3.4, and maybe it is 3.0 now but then my Pca may laugh at doctors and PSA could rise, and I may have to go to Docetaxel chemo, which is unlikely to stop it so then maybe Lu177 systemic RT, and then maybe I need more than 4 infusions. It seems that my Puff The Magic Prostate Grenade is slowly exploding under me and if I get max RT I may delay death a bit, or else I have a terrible life anyway from side effects of treatment.

But right now, Nov 2017, I am cycling 300km a week and back in a cycling group I last cycled with some 4 years ago, and I am not the slowest. This is mainly due to having both knee joints replaced in Feb this year, 2017, and that operation was extremely successful. I'll keep cycling until the cancer pushes me off my bicycle - a nice Cannodale carbon road bike with 10 speeds.

I am lucky I don't get depressed. The cycling keeps my heart and lungs and fitness high, but as soon as PCa spreads a lot more then it's game over.

Cheers to all. Patrick Turner.

UPDATED

February 2019

Please read my recently updated whole story for how PCa is on its way to kill me and with my PSA graph at: http://www.turneraudio.com.au/Patrick-other-concerns.html

This shows that since mid 2016 when ADT failed, I had 31Gy salvation IMRT with Calypso to PG, and 45Gy to two lymph nodes, and then had Cosadex which worked for 6 months, then Zytiga that worked for 8 months, then this year I had 3 months and 5 chemo shots that failed then began Lu177 and PSA is probably now about 20.

If you really want all men's details. PLEASE READ ALL they have written, or your survey is fairly useless. What you get at my website is a summary of what would make up a medical report, many pages long.

Without each man giving you the full picture, your survey might be fairly useless.

UPDATED

March 2020

I have not yet updated my website since last November when my PSA dropped to 0.32 after getting what looked like a good response with Lu177.

Since then, PSA has risen to 1.3 at 1 month ago, so I expect maybe 4.0 and next meeting with my oncologist, and maybe Xtandi I have been taking since last April is now not working.

But I did have full body and mid body CT scans 3 weeks ago to assess PSA status and only two small bone mets were were thought to be active. It is still too early to say how my Pca is progressing.

But over last 3 weeks I have cycled about 600km; I am keen road cyclist and speed and strength is good despite being 72yo. I feel very well.

If the mets I do have cannot be treated with Lu177, I may have IMRT, or maybe DNA analysis of tumor sample to match to choice from variety of medicines, maybe PARP inhibitors.

I am mentally quite sane, and have no partner, and had no kids, and I am not emotionally needy, and I sleep OK, Life COULD be better, but it's getting too late to wish for that, and reality is that life COULD HAVE BEEN better, but it never was, and so darn what? - but any better life would have been a pile more responsibilities.

Going to my local hospital for treatments is the nearest thing to being happily married, especially when a nurse asks "Is there anything else you want now Mr Turner?"

It is hard to keep a dry eye sometimes.

We are all on a Queue, and in this we finally served with a full stop when we arrive at the distant counter. This is the only queue where all the ppl in front of us turn around to ask us if we would like to go ahead of them.

Love those around you who need it.

Patrick's e-mail address is: patrick AT turneraudio.com.au (replace "AT" with "@")


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