Marvin S lives in Kansas, USA. He was 64 when he was diagnosed in June, 2015. His initial PSA was 35.20 ng/ml, his Gleason Score was 7a, and he was staged T3b. His choice of treatment was External Beam Radiation+ADT (Intensity Modulated with ADT). Here is his story.
May 26 Visited Dr K. due to urgency of urination.
June 11 PSA test following a DRE at Dr K.'s office PSA=35.2
June 12 Discussed results with Dr. K,- Referred to Dr Z.-Biopsy
June 22 12-needle biopsy Gleason score of 3+4=7. Dr. Z recommended prostatectomy due to high PSA and size/involvement of tumor. Rated at T3
June 30 Whole body bone scan- no unusual uptakes
July 2 Lower Abdomen CT scan-
July 14 Phone Visit with Dr. C. (Topeka) Rec RT
July 15 Personal visit with Dr. R. Decided on RT
July 29 45 ml Lupron Injection
Aug 25 2nd PSA test = 9.0
Aug 27 Fiducial Placement (3 markers inserted)
Sept 3 RT simulation
Sept 9 Began 1 of 42 treatments.
Nov 5 Completed 42 Radiation treatments- no side effects.
Nov 10 3rd PSA test= 0.3
Jan 18th PSA test= .1
Jan 29th 2nd scheduled Lupron injection- refused due to side effects. (letter to Dr. Rine)
Mar 9th Dr. Barbara L., pretty much said continue on Lupron or metastasization into bones. Lupron injection scheduled.
Mar 21st Went in to SBA hospital for PSA Check.
Went to Wichita Urology Dr. Z for Lupron injection. 45ml (6 mo)
Also received 16ml Prolia injection to minimize bone loss.
PSA test = .4… I was 2 months beyond the Recommended interval
May 1st Slight burning during bowel movment. Some weight gain (5 pounds) Possible 1" height loss ??? Definite Gynecomastia.
Some urinary restriction- resumed Flowmax (.4mg). (resolved)
Elevated BP. Continued hot flashes. (Black cohosh 40mg)
Joint pain (Ibuprofen 200mg 4 times daily). Occasional slight dizziness with blurry vision. Marked short-term memory loss.
If next PSA is elevated, is Provenge indicated? Intermittent therapy w/Lupron? Any recommended clinical trials?
May 18th Appointment with Dr. Barbara L. for above.
Next scheduled appointment in October 2016 for an additional Lupron shot.
June 14- Contacted Dr K.'s office and requested a PSA test.
June 16- PSA test= undetectable
Aug 11 Complete Physical PSA > .01
Marvin's e-mail address is: marvinsteele AT netscape.com (replace "AT" with "@")