My name Allan Murray, my wife Nancy and I live in Southampton Ontario, I am 70 years of age. I have always lived an active life, twice a week to the gym, cycle 80km each week, except winter and play golf 3 times a week, not bad at it too. I have always had my PSA checked at my annual check up before leaving for Florida.
Over the last 4 years it has increased from 0.6 to 1.0 to 1.7 to 3.4. Unfortunately I did not insist on a DRE (Digital Rectal Examination) on an annual basis, relying on the doctor's opinion, this was a mistake. I now believe that a DRE is much more significant than a PSA. [This is not borne out by studies, but certainly the DRE is an important part of the diagnostic process, especially for those forms of prostate cancer that generate low levels of PSA]
We went to Florida for 3 months and I was still carrying my golf clubs, however I started to feel some discomfort in my lower back. Got on Google and checked my symptoms and concerns; on arrival back home arranged for another PSA, 6 months from previous PSA it was now 6.7 An appointment was set up with a Urologist and a biopsy was taken, no hassle, no discomfort. Gleason 7, stage T2a, had a bone scan, CAT scan and an X ray, he recommended surgery. I agreed, however he was a younger man who did not have a great deal of experience, so I asked if he would refer me to a more experienced urologist, a person that my golfing buddies recommended.
He had no problem with this request and later I had a meeting with the second urologist, he after performing another DRE agreed that surgery was the way to go. I had surgery on October 7, 2009, released from hospital 2 days later, catheter was removed 2 weeks later, boy was I glad.
Had an appointment with urologist 6 weeks after surgery; not so good. He had removed 7 lymph nodes and there was a 2mm in one of the nodes, my PSA was non detectable I was still Gleason 7, staging now T3aN1. He recommended checking my PSA every 3 months and when results indicated so, to consider hormone treatment. I requested that an appointment be set up with an oncologist.
We live in a small community on the shores of Lake Huron [God's country] and as at this time of the year we have quite a bit of snow, a video meeting was set with the oncologist in London Ontario, a facility that is attached to Western University. For those of you that are not familiar with this kind of set up, believe me it is the way to go, my wife and I sat at a table in a small conference room in our local small community hospital, the video was on a secure web link, I had my papers all set up in front of me c/w a coffee. The oncologist, who had my complete file, said that radiation was not really an option as the cancer had spread to adjacent lymph node, his initial opinion was to commence with hormone treatment now, however he had no problem in delaying it in agreement with the urologist, also my own choice. His evaluation that the presence of an involved lymph node does predict a high risk of subsequent systemic relapse. Our detailed discussion lasted an hour and I obtained a copy of his notes on our discussion.
I have been unable to find much information on prostate cancer spreading to the lymph system, if anybody can direct me in that direction, I would be obliged. [This issue was discussed at 107th Annual Meeting of the AUA - New York Section - August 19 - 26, 2009, Seward, Alaska and a copy of the presentation by Dr Scardino is available - it may be necessary to Register to read it, but there is no charge]
We are going down to the big city to enjoy Xmas with our family and then off to Florida with our golf clubs for 3 months Merry Xmas.
Almost one year from my surgery, had my PSA checked four times with readings continuing to be non-detectable.
Receiving no medication or treatment, consume lots of green tea, daily garlic pills. still continuing with my active lifestyle. Cut back on red meat, coffee and alcohol, settling for an occasional Scotch and a daily glass of red wine.
Urologist is encouraged with my results.
Still good news, PSA still non detectable, no treatment, maintaining an active lifestyle, lots of green tea, garlic pills, careful with diet and minimum alcohol.
Thank you and take care.
I am still doing very well, careful with diet and alcohol, still at the gym twice per week, golfing and riding my bicycle or walking 5 km. on the off days. Still on my garlic pills and green tea, appreciate your web site and all of the effort that you put in.
Have a nice day
Hi 3-1/2 years since surgery, still doing well. I have my PSA checked every 6 months. I faithfully maintain walking, exercise, cycling, watch what I eat, take my garlic pills morning and night, drink my green tea. leaving enough room for my daily glass of nice wine and my occasional Scotch. I have convinced myself that keeping all of these actions, are keeping the cancer away.
Have yourself another nice day
Coming up for 5 years since surgery, still following the same game plan. Gym every week, cycling, golf 3 times/week pulling cart. Garlic pills in the morning, daily green tea plus an occasional black coffee, daily glass of wine and an occasional Scotch. I maintain a positive frame of mind regarding my health, never think about my cancer. I believe that these activities all contribute to the zero PSA reading. I now have a yearly check up and I am now approaching my 75th. birthday. Hang in there my friends.
Have a nice day
Coming up for my 76th birthday, still enjoying good health, have a few aches and pains, lucky me. After 6 years my PSA is still undetectable. I still follow the same procedures and habits, this I believe is important. I still golf, not as well now.
Have a nice day
After 7 years my urologist has declared me cancer free. I will continue to follow my previous routine since surgery.
To all, hang in there it takes time and a good positive attitude.
78 years old now, still keeping active, gym twice per week, walking 3 miles most days, pickle ball twice per week. I had successful open heart surgery to replace my aorta valve in August. I had to stop all of my physical activities for 2 months, now back on my regular exercise routine. Never think about the cancer issue, stay positive.
Allan's e-mail address is: fardens AT aol.com (replace "AT" with "@")