Walnut

Subscribe to RSS Feed for recent updates
Subscribe to RSS Feed for recent updates

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

SURVIVOR STORIES  :  DISCUSSION FORUM  :  WIVES & PARTNERS  :  TELL YOUR STORY  :  UPDATE YOUR STORY  :  DONATIONS  :  TROOP-C

YANA HOME PAGE  :  DON'T PANIC  :  GOOD NEWS!  :  DIAGNOSIS  :  SURVIVING  :  TREATMENT CHOICES  :  RESOURCES  :  ABOUT US  :  MAIL US

 

  SILVER  
This member is a YANA Mentor This is his Country or State Flag

Dennis Carlisle and Diann live in Illinois, USA. He was 60 when he was diagnosed in December, 2008. His initial PSA was 1.90 ng/ml, his Gleason Score was 9, and he was staged T2. His choice of treatment was External Beam Radiation+ADT (Intensity Modulated with ADT). Here is his story.

The whole year of 2008 I had problems urinating. I would see my family doctor. Often complaining of frequent urination. I was given exams on the prostate and PSA test but every thing would come out normal.

Finally I was sent to the urologist and gave me a biopsy on the prostate and it came back positive for Stage T2 cancer with a Gleason Score of 9. Two weeks later I got a second opinion and the cancer moved to stage T3.

I found out that I had one of the rare cancers that that destroys cell so fast that a bad PSA is not detectable. I have finished radiation 39 treatments and am still on Lupron every 4 months.

My last PSA test on June 12 2009 was 0.1. Next test is on August 17 2009 so I am waiting.

UPDATED

September 2009

I had my third Lupron shot on August 16 2009 and exam. PSA was down to 0.0 and the prostate was smooth and flat. The doctor says we have the cancer on the run. Its been 9 months since diagnosis - I hope the cancer is on the run forever.

UPDATED

January 2011

December 18 2009 had exam and PSA test. All is still fine and PSA is still 0.00 one year since diagnosis I pray it stays ok.

UPDATED

March 2011

The doctors have taken me off all treatments as of April 2010 as PSA has been at 0.40 for eight months.

So just watchful waiting at this time. Next exam is June 9 2011.

UPDATED

January 2012

As of November 2011 the cancer has came back as detectable (0.10) but the doctors are still going to wait six months before doing anything.

UPDATED

May 2012

Urologist stated that the cancer is returning too fast went from PSA 1 to 6 in six months he is going to freeze the prostate and place me back on Lupron. This will begin in August.

UPDATED

February 2013

Appointment with urologist on 26 of Feb. 2013 still waiting for urologist to decide next step.

UPDATED

March 2013

Will begin hormone Lupron shots again on 3/27/2013 once a month then we will watch.

UPDATED

July 2013

Urologist has now placed me on a vegetarian diet with no treatments of any kind as of now will get review with him again in Sept.

UPDATED

September 2013

Saw urologist on Sept. 26, PSA test has shown no change from last test. Stayed at 4.7, the doc. says we will wait 3 months then test again.

UPDATED

January 2014

Saw urologist on December 20, 2013. PSA rose to 12.0 we will begin hormone treatment again - don't know which yet.

UPDATED

February 2014

Dec. 27, 2013 urologist started me on Fermagon shots for three months then after that back to Lupron every 4 months will do a PSA test on Feb. 27 2014.

UPDATED

April 2014

April 1 PSA rising to 12; switch from Fermagon back to Lupron. May 1 will have test to see if lupron is working; fermagon did not work. If Lupron does not work, urologist will filter my blood will have to wait.

UPDATED

July 2014

Went to urologist, PSA went to 20 also went to stage 4 with cancer spreading to bones put on Casodex 50 mm and Lupron shots I'm waiting for the doctor's office to call for info on further treatment.

UPDATED

August 2014

On Aug. 4 will begin Provenge treatment for 6 weeks, as nothing else is working. If this fails to help will probably go on chemo. Very expensive treatment.

UPDATED

September 2014

Just had six weeks of Provenge treatment, very expensive, next, we will wait and test PSA in a month after this, chemo, when don't know yet see doc on October 3.

UPDATED

October 2014

PSA drop to 5.0; Still on Lupron; see urologist on January 3, 2015.

UPDATED

January 2015

Had Provenge treatment Sept. Not worth it. The Dendrion people who own it are liars and my oncologist is against it. I suggest you do not have this treatment. The benefits are not good.

PSA went from 4 to 10. Cancer went to spine. I am now receiving radiation on back and will begin chemo after radiation.

Looks like cancer is on the move; I pray it stops.

UPDATED

February 2015

Cancer spreading in spine fast, will begin chemo on March 12, 2015. I pray it works.

UPDATED

March 2015

Began chemo once every 3 weeks; will last 18 weeks; should end in July 2015. Will see what happens.

UPDATED

June 2015

06/25/2015 will be my last chemo treatment this time around then will wait to see what happens.

UPDATED

September 2015

Chemo did not work, cancer traveled to neck and shoulder. Sept. 3 started radiation again for 3 weeks. Hope it helps, in a lot of pain, see oncologist on Sept 10 2015; will find out what's next.

UPDATED

October 2015

Started Zytiga and Prednisone, will see in 2 months if it works. Just finished radiation on my back. Cancer is moved to my spine and bones.

UPDATED

December 2015

Seen oncologist on Dec 10. The pill Zytiga is working so far and has reduced my PSA from 19.05 to 17.5. Will be tested each month for the drug's action and stay on it until it stops working. Then we will see.

UPDATED

February 2016

Still taking Zytiga pills. PSA has dropped to 7.75 from 19.5.

UPDATED

July 2016

Went to oncologist June 30. The Zytiga drug stopped working. PSA went up to 12.2 from 7.75 so doc is going to set me up to try new radiation shot. Don't know about it but I'm waiting to hear from the doctors.

UPDATED

August 2016

Will begin a radiation treatment on Sept 1, will be done by infusion in the veins. Don't know the name yet but is designed to attack the cancer cells in the bones. I will have an infusion once a month for 6 months.

UPDATED

October 2016

PSA went up to 16. Still receiving intravenous radiation, will be done by January 19. Just waiting for now.

UPDATED

December 2016

Still taking internal radiation. Will be done on 1/19/2017. My PSA is up to 22 now. Tumors are in my spine and I'm in a lot of pain every day. Going to go to pain management soon.

UPDATED

May 2017

All my doctors say that it's time to stop treatments and go on hospice. I can't function too good now, so I stopped all treatments for now. As of May 2017, I did not want to know my PSA or anything else so I don't have them. I will wait and see what happens now.

Dennis's e-mail address is: carlisle20005 AT yahoo.com (replace "AT" with "@")


RETURN TO INDEX : RETURN TO HOME PAGE LINKS