Walnut

Subscribe to RSS Feed for recent updates
Subscribe to RSS Feed for recent updates

YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

SURVIVOR STORIES  :  DISCUSSION FORUM  :  WIVES & PARTNERS  :  TELL YOUR STORY  :  UPDATE YOUR STORY  :  DONATIONS  :  TROOP-C

YANA HOME PAGE  :  DON'T PANIC  :  GOOD NEWS!  :  DIAGNOSIS  :  SURVIVING  :  TREATMENT CHOICES  :  RESOURCES  :  ABOUT US  :  MAIL US

 

  RHODIUM  
This member is a YANA Mentor This is his Country or State Flag

Harry Moore and Elizabeth (deceased) live in Alberta, Canada. He was 58 when he was diagnosed in April, 1997. His initial PSA was 14.00 ng/ml, his Gleason Score was 5, and he was staged T1c. His initial treatment choice was Surgery (Retropubic Prostatectomy + ADT) and his current treatment choice is None. Here is his story.

He had Hormones of Lupron and Flutimide for 8 months prior to surgery which was tolerable with side effects. Surgery for Radical Prostatectomy was performed on 15 January 1998, with no complications. Worked with physiotherapist doing "Kegel" exercises after surgery. Incontinence tapered off in late April 1998 and stabilised at "OK" level. Some minor and annoying stress incontinence remains. Current PSA undetectable on most sensitive test (0.02 or less). Impotent at this time.

Harry is a strong supporter of a local PCa support group.

UPDATED

October 2002

Harry Moore is now 63 with a PSA of 0.002 and is taking part in a trial. The trial is to determine if 3 months or 8 months of anti-androgens is better before a radical prostatectomy in terms of ease for the surgeon and success rate. He was told he had a very small prostate after the 8 months and this made surgery difficult They have extended the trial from 5 years to 7 years because they believe 5 years is too short a cut off for prostate cancer recurrence.

UPDATED

November 2005

Urologist says I am "cured" (January 2005). However, the side effects of the cure - erectile dysfunction and stress incontinence.

UPDATED

January 2007

Last PSA was undetectable. Still impotent, but that is no problem as I do not have a partner after my wife died 5 years ago. I also understand that happens to many men of an older age, in any event. I am otherwise physically fit. No back problems, bike swim and dance.

UPDATED

May 2008

Harry is now 69 and says: I am doing well and just had my PSA and it is undetectable. Impotence is an issue but not having a partner, it doesn't matter much. Meanwhile, I'm in good shape as far as things go. I dance, swim, bicycle, hike, walk and eat out.

UPDATED

December 2008

What a difference six months makes. Harry says he's well but as he has a new love in his life, he regrets the impotence.

UPDATED

June 2010

I had a little concern last month in a routine annual PSA test. It showed 0.4 after 12 years. It was the first indication of any rise in PSA in 12 years. I had it repeated a week later and it came back undetectable. So I choose to believe it was an erroneous test. Otherwise no change. BTW, I moved and also got married again last month after eight years of widowhood.

UPDATED

July 2011

Had a PSA scare last year, when it showed a slight increase to 0.4 and all other times for several years it had been undetectable. I insisted on another test immediately. Two subsequent tests have been undetectable. Probably a test error. All is well or at least tolerable.

UPDATED

June 2012

Moved to British Columbia several years ago, and found medical system good. I have a PSA every year. I was married again two years ago. I am starting to think there must be better treatments today with fewer severe side effects than a Radical and would advise all to look carefully at options.

UPDATED

July 2013

No change from previous updates. Not thought about much anymore.

UPDATED

October 2014

No Change.

UPDATED

December 2015

All remains stable and same as previous stories.

UPDATED

January 2017

Except for side effects of radical, all is well, with many years of stability.

UPDATED

February 2018

Same story, no issues.

UPDATED

March 2019

No change since prior submission.

UPDATED

April 2020

No change. All is good, what was not, I have adjusted.

UPDATED

January 2023

Surgury done 1998. Now 2023. (25 years) Negligible PSA to date. Ensured cancer had not escaped capsule by bone scan prior to surgury.

UPDATED

February 2024

All is good. Annual PSA negligible.

Harry's e-mail address is: hcom AT telus.net (replace "AT" with "@")


RETURN TO INDEX : RETURN TO HOME PAGE LINKS