I was doing "watchful waiting" for a little more than a year after initial diagnosis in November 2007. My urologist recommended surgery by him straightaway.
After another biopsy, a year or so later by another urologist, this urologist suggested I undergo treatment soon. After much research, I chose to do Proton Therapy at Jacksonville, Florida.
It took about three months from the initial phone call to when I actually began the proton treatment. I finished 39 doses of proton radiation there in March 09, and can say that things went very well for me. I had few side effects during the treatments, some urinary urgency was about it, took no pills, and have had no side effects so far. My PSA dropped from 5.0 at the start to 2.3 at the end of the treatments, and my expectation is for drops in my PSA reading going forward. So far, so good, all systems in operating condition.
And I am glad to have the cancer out of there, no question about it.
Current PSA: 1.1 No side effects to date, 17 months out.
PSA steadily declining in the 3 years since treatment. Only side effects has been occasional rectal bleeding a few times, which first happened at 15 months after treatment. PSA is at 0.8.
Psa seems to have leveled off in the .4 range the last few check ups.
5 years out since proton radiation. PSA leveled out below 1. No side effects.
No changes, issues.
7 years out from proton treatment at Jacksonville, 39 doses. PSA has leveled about .6 for the last 5-6 years or so.
So far so good. No issues no side effects.
Jeff's e-mail address is: jeff6235 AT comcast.net (replace "AT" with "@")