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This member is a YANA Mentor This is his Country or State Flag

Ken Simon and Marilyn live in the USA. He was 54 when he was diagnosed in September, 2006. His initial PSA was 3.70 ng/ml, his Gleason Score was 6, and he was staged T1c. His choice of treatment was Surgery (Retropubic Prostatectomy). Here is his story.

My PSA went up from 3.2 ng/ml to 3.7 ng/ml in one year and GP ordered a biopsy in August 2006.

I was informed in September that 4 out of 11 cores contain cancer, 3% involvement on right lobe, 2% on left lobe. I opted for radical prostatectomy (nerve sparing), which was performed in November 2006 at Memorial Hospital, Pawtucket, RI. (Foley bag for 11 days, 3 pads a day for a month, 2 pads a day for a couple of months, 1 pad a day for about 3 months, no pads after 5 1/2 months. At 6 months still impotent)

The post-operative pathology showed: Stage T2c, Gleason 6, 3+3, Right apical margin focally positive. The urologist suggested I see a radiologist, and I did so in December 2006. He ordered a CT scan for Janaury 2007.

A small mass (1.5 cm) is discovered on my right kidney. After second opinion we decided on a partial nephectomy (removal of a portion of the kidney), hand assisted laparoscopic surgery performed at RI Hospital, Providence, RI 3/07. That post-op pathology also showed positive margins, we'll keep a close watch and I may have to have a total nephectomy in the future.

Begin radiation treatments (IMRT) in the prostate bed end of April 2007 at North Main Radiology, Providence, RI. I'm scheduled to have 36 treatments (6,660 rads).

UPDATED

June 2008

Had 36 treatments (6,660 gy), finished June 2007. After radiation stress incontinence returns, still impotent as of June 2008. PSA is 0.04 ng/ml.

UPDATED

August 2009

Things have not changed at all. PSAs for the last year have been 0.03, still have stress incontinence, still have ED.

My radiologist told me before I had any treatments that whatever my incontinence level and ED were then, that's what it will be for perhaps the rest of my life. So far he's right. Let's hope that the PSA level stays locked in also.

UPDATED

February 2011

Still everything remains the same as my last update other than my PSA fluctuating between 0.01 and 0.02.

Incontinence (one pad a day) and ED (about 75% erection without any aids) are the same as when I finished IMRT almost four years ago.

UPDATED

April 2012

It's been over five years, no changes at all. PSA 0.02, still one pad a day, still have ED.

UPDATED

May 2013

Over six years and counting. No change at all, 0.02, one pad a day, ED.

UPDATED

June 2014

7-1/2 years and no changes other than switching labs, my PSA is now 0.01. Still one pad a day.

After mixed results taking pills for ED I now use Trimix with great results, I would highly recommend it.

UPDATED

July 2015

Almost nine years and everything's the same. TriMix is a wonder drug, if anyone is leery of sticking themselves with a needle there's no need to worry, if you do feel it, it's just a little pinch (sometimes you feel nothing). The great thing is no stuffiness or blue vision that you get with pills and ten minutes after the injection you're good to go.

UPDATED

August 2016

Same old story, no changes - 1 pad a day, TriMix, PSA 0.04. Just about 10 years.

Ken's e-mail address is: kp.simon AT verizon.net (replace "AT" with "@")


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